THIS MEETING HAS CONCLUDED

Mark Your Calendar for August 13, 2012!

Mike Beshada

TOPIC: Disaster Preparedness

Director of Safety, Security, & Disaster Planning, CJW Campus

Time: 1:30 – 3:00 p.m.

Refreshments Provided Courtesy Of:
LinCare

Bosher Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

Mark Your
Calendar
for
September 10

Dr. Demetrius Julius

Medical Director
CJW Sleep Disorders Center

TOPIC: Sleep Apnea and
Related Ailments

CHIPPENHAM MEDICAL CENTER

Refreshments Provided Courtesy Of:
LINCARE

NEW VIDEOS ADDED TO THE VIDEO SECTION!

- Click Here -

Did you know that
October 21-27, 2012 is
Respiratory Care Week?

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

THANK YOU TO FASTCAP

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

THE IPF ASCEND TRIAL

YOU ARE INVITED TO PARTICIPATE

The ASCEND trial is a large clinical trial currently enrolling patients in the United States, Mexico, Australia, New Zealand and select South American countries. This trial is designed to evaluate the efficacy and safety of treatment with pirfenidone in patients with idiopathic pulmonary fibrosis (IPF).

MORE INFO AT acendtrial.com

Benefits of Joining A Support Group

With an illness like Lung Disease, often a feeling of hopelessness and loss of control becomes the norm. With a support group, participants are able to regain that sense of control and exercise authority toward management of their situation.

Support groups can be instrumental in improving psychological motivation. By simply getting "out of the house" and joining with other people with an understanding of the problems being faced, a positive attitude can be nurtured and improved.

WHO CAN JOIN

Any individual that is lung affected can become a member. However, recognizing that it is not only the individual with the lung disease that needs support we encourage the caregivers or “care partners” and other family to join and attend the meetings. Learning and receiving support together helps to equalize the disease experience for all who are involved.

NEW ARTICLE!

Surviving Mesothelioma

Read Online

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

Resource links

1. Alpha-1 Foundation
2. American Academy of Allergy Asthma & Immunology (AAAAI)
3. American College of Allergy, Asthma & Immunology
4. COPD Foundation
5. COPD.org
6. Cystic Fibrosis Research Foundation
7. Drive 4 COPD
8. National Home Oxygen Patients Association
9. The LAM Foundation - Lymphangiomyomatosis - research and support
10. National Heart, Lung, and Blood Institute
11. National Jewish Medical and Research Center
12. National Emphysema COPD Association NECA
13. Pulmonary Hypertension Association
14. Pulmonary Fibrosis Foundation
15. The Pulmonary Paper
16. Society of Thoracic Surgeons
17. Surgeon General's Tobacco Cessation Guideline
18. Sarcoidosis Resources
19. www.ipftoday.com
20. www.coalitionforpf.org
21. www.huff-n-puff.net
22. www.ipfnet.org
23. www.ASCENDTrial.com
24. www.thoraic.org PDF
25. Pulmonary Fibrosis Friends Yahoo Group

More links being organized, if you have suggestions of good, quality information sources, please send it to us.

HELP US!

Do you know of a currently operating pulmonary support group? We are compiling a list for this website: if you know of one, let us know. Thanks.