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A Dedication to Resourceful Living: A group approach to focus on what matters to the members of our community whose lives are impacted by chronic lung disease.

Breath Matters Virginia Lung Support Group

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Mark Your Calendar for June 11th, 2012!

Speaker: Paul Fogelberg, Pulmonary Fibrosis Patient-Advocate

Fogelberg

Topic:
"TOPIC: IPF Legislation,
YOUR PART, YOUR DISEASE"

Paul Fogelberg Biography

Time: 1:30 – 3:00 p.m.

Refreshments Provided Courtesy Of:
LinCare

Bosher Auditorium
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225

You're Invited!

Mark Your
Calendar
for
July 9!

Dr. Glenn Giesel, Pulmonologist,
Pulmonary Associates

TOPIC: Emphysema, Tobacco,
and COPD


Refreshments Provided Courtesy Of:
Health First Medical

Questions? Call the Facilitator, Russell Glover (804) 378.0628. Donation in Memoriam page


OUR SPONSORS

Chippemham Hospital of CJW is our largest supporter

Lincare, Rachele Clement, Representative

Louisa Home Care, Roger Householder, Representative

Roberts Home Medical, Jo Lynn Hamelman Supervisor


SUBSCRIBE TO OUR FREE NEWSLETTER! EMAIL SIGNUP

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

WRITE CONGRESS

THANK YOU TO FASTCAP

Pocket Mask

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

THE IPF ASCEND TRIAL

IPF ASCEND TRIAL

YOU ARE INVITED TO PARTICIPATE

The ASCEND trial is a large clinical trial currently enrolling patients in the United States, Mexico, Australia, New Zealand and select South American countries. This trial is designed to evaluate the efficacy and safety of treatment with pirfenidone in patients with idiopathic pulmonary fibrosis (IPF).

MORE INFO AT acendtrial.com

NEW ARTICLE!

Surviving Mesothelioma

Read Online

BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

DONATE NOW

Virginia Easy Access

For seniors and adults with disabilities and the providers that support them

TRANSPORTATION FINANCIAL
HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access

Questions?

804.937.6855


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804.937-6855

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Erik Weems