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PAST MEETING
Monday, August 14, 2017
Speaker: April Williams, Nutritionist
Topic: Living with Lung Disease and Heart Failure
Hello from Breath Matters!
This August 14, we're hosting a Founder's Day celebration at the Breath Matters monthly meeting.
Our focus will be mainly on the original founders Russell Glover and David Sanders, but we are also planning to applaud membership for their support in the development of this charitable legacy.
The meeting agenda will mostly resemble the typical monthly meeting, with a topical speaker and a sharing session. However, we also will have a bit of a look back at the history of the organization and a thank you to those folks who really were fundamental to getting Breath Matters started.
We'll end with some light refreshments and a casual mingle. We are committed to keeping it fun and light, Russell and David would have hated something morose and downbeat!
Johnston Willis Hospital (Stalker Auditorium).
We really hope to see you there and give you a hearty "thanks" for your support. We'd appreciate an RSVP, just to help our planning.
SPECIAL EVENT
LUNG FORCE EXPO - March 17, 2017
Richmond Marriott at Short Pump
To register :
Lung Force.org/Expo
Monday, April 10, 2017
Speaker: Christopher McKenney, PA-C
Title: Getting the most from your MD Appointment
Monday, May 8, 2017
Speaker: Dr. Susan Scharpf
Title:Transitioning Care from Hospital to Home
ANNUAL HOLIDAY GET TOGETHER!
1:15PM - 3:00 PM
PLEASE BRING A COVERED DISH
VALET PARKING PROVIDED AT NO CHARGE
More information about this event at the Pulmonary Fibrosis Foundation web site
Pulmonary Fibrosis StudyThe Participation Program for Pulmonary Fibrosis (P3F) are currently recruiting pulmonary fibrosis patients (fibrosis of any etiology, not just IPF) to sign up for a Contact Registry as well as for a study in which we will examine the effects of daytime supplemental oxygen on a number of outcomes.
For our supplemental oxygen study, we are looking to enroll patients currently using supplemental oxygen and those likely to need supplemental oxygen in the next year or so.
We are asking for your help only to spread the word about this study to all the members of your support group. All data collection will occur either online or via mailings.
Packets containing a more detailed explanation of the study along with recruitment materials (e.g., flyers, business cards) are being mailed to you and should reach you in a few days.
We appreciate your time and attention, and we hope that you can help us by letting the members of your pulmonary fibrosis support network know about these exciting opportunities.
If you would like more information about the P3F, please check us out at www.PFresearch.org and follow us on Twitter at @DoctorSwig or email our Principal Investigator, Dr. Swigris, directly at swigrisj@njc.org.
This note came into Breath Matters March 2014:
Russell, I have some news about idiopathic pulmonary fibrosis, and I'm hoping that you could distribute it to your group at Breath Matters.
Intermune is holding a press conference today that will show positive results from the most recent pirfenidone study. This will likely make it the first FDA approved treatment for idiopathic pulmonary fibrosis.
They will take their information to the FDA later this year, and the medication may be available by the end of 2014. For those in the group with idiopathic pulmonary fibrosis, we are participating in an "open access and early availability" study that will help Intermune with additional safety and tolerability data.
More importantly, it will give patients with IPF access to pirfenidone before it becomes FDA available. There is no placebo arm, everyone will get the medication who qualifies.
If anyone is interested, the study coordinator is Amy Frayser (804-828-7966). Thanks, Dan Grinnan
Overview of Clinical Trials
The January 12, 2015 meeting with Annette Bennett was an informative session with plenty of questions and answers from the audience.
Dr. Voelzke gave an extensive review of lung cancer at the February 2015 meeting. He discussed recent advances in treatment and possible future breakthroughs.
"Sleep Apnea - The Unknown Danger Everyone Should Fear"
The April 13, 2015 meeting with Professor Adrian Aron was an examination of Sleep Apnea and the impact it has on COPD and a variety of other lung and health problems.
1:15 to 3:00 PM
Mobility is important!
Sherry Wilson came to speak at the May 11 Breathmatters meeting. She spoke about the challenges of maintaining or reclaiming mobility after hospitalization or while battling debilitating ailments.
Joan Shifflett spoke at the June Breathmatters meeting about After Care for Lung Disease Sufferers, and about the general problems of identifying quality care service for patients, senior citizens and their families.
MORE ABOUT THE JUNE 2015 MEETING
TOPIC: ACID REFLUX & its
Relationship With C.O.P.D. and Pulmonary Fibrosis
Janet Pinson spoke at the July 2015 meeting of Breathmatters about acid reflux and how it particularly effects lung disease sufferers.
TOPIC: Lung Transplantation for
End Stage Lung Diseases i.e.
Sarcoid, C.O.P.D., C F, LAM
Shawn Floyd spoke at the August 10, 2015 meeting of Breath Matters. Mr. Floyd began with a brief overview of the history of lung transplants which began with Dr. James Hardy performing the first human lung transplant operation in 1963 in Jackson, Mississippi.
Speaker: Dan Bayliss
RN, MS, CES from
Topic: Importance of Exercise
Speaker: Erik Larsen
Clinical Education Manager Genentech
Topic: Safety and Efficacy of Pirfenidone for IPF
Speaker: Gwen Reed-Blankenship
Bon Secour
Topic: Grief counseling
REFRESHMENTS PROVIDED
Gwen Reed, LCSW, AHPC-SW is a Licensed Clinical Social Worker, an Advanced Hospice and Palliative Care Social Worker and the Bereavement Coordinator at the Bon Secours Bereavement Center.
She received her Advanced Standing Masters in Social Work at V.C.U. in 1993 and her Bachelors of Social Work at Eastern Mennonite University in 1985. She started hospice work in Pennsylvania, when the field was in its infancy and has since counseled grieving families for over 25 years. Gwen supervises Masters level Interns and licensure candidates and does guest teaching for VCU social work classes.
Gwen finds it meaningful to guide others as they transform sorrow into new strengths, like the Phoenix rising from the ashes.
Annual Holiday Luncheon and Celebration!
This event sponsored by
Dr. Max Weder, Medical Director VCU
Associate Professor of Medicine
Topic: Lung Transplants, Recipes for Success
Dr. Max Weder, Medical Director VCU Associate Professor of Medicine Topic: Lung Transplants, Recipes for Success
He is the attending physician for pulmonary hypertension. He is also the associate professor of medicine at the University of Virginia specializing in lung transplants at one of Virginia’s top hospitals. He comes to us from Humboldt University in Berlin Germany. He completed his postgraduate education at Tulane University and his fellowship at the University of North Carolina At Chapel Hill.
He Teaches, he does research, he has presented at conferences, He is published in books, magazines, and referenced in several medical Journals.
He is married to Uta Erdbruegger MD and they have three children, Jakob, Anton and Paul all were born on February 26, 2007 triplets!!! We are very fortunate to have him.
He is here today to talk about "Lung Transplant - Recipes for Success".
Russell Glover was the original President and Facilitator at Breath Matters Support Group
Speaker: Dr. Steven Nathan, MD, FCCP, Medical Director, INOVA Lung Transplant Program
Topic: The Relationship Between IPF,
New Meds, & Transplants
Speaker: Darrel Bowe, CRT
Program Director for Med Inc. & COPD 360
Topic: Trilogy - The Treatment for
COPD Patients with Chronic Respiratory
REFRESHMENTS PROVIDED by
DOOR PRIZES!
ALL BREATHMATTERS MEETINGS ARE FREE AND ARE OPEN TO THE PUBLIC
REFRESHMENTS PROVIDED.
ALL TALKS INCLUDE A
QUESTION AND ANSWER PERIOD.
Directions and Map
Judith Coward Obit - April 2014
Breath Matters Pins - numbered special edition
The Amazing Raise - Archive 2013
Hazel Caldwell - Obit Memorial Archive
TRANSPORTATION FINANCIAL
HOUSING
Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.
Website: Virginia Easy Access
Site by
Erik Weems
