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A Dedication to Resourceful Living: A group approach to focus on what matters to the members of our community whose lives are impacted by chronic lung disease.

Breath Matters Virginia Lung Support Group

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NEXT Meeting: May 13th, 2019

Theresa Altherr, BA, CIP, CCRP

TOPIC : Interstitial Lung Disease (ILD) Research


STALKER AUDITORIUM

Johnston - Willis Hospital
1:15 PM to 3:00 PM

VALET PARKING PROVIDED AT NO CHARGE

DOOR PRIZES

You're Invited! Refreshments Provided!


Past Meeting: April 8, 2019

Dr. Jeremiah Fabry, D.C., R.N., C.N.I.M.

Dr. Jeremiah Fabry

TOPIC : Being Your Own Best Advocate: The Value of my Yearly Physical

Dr. Fabry spoke about the value of regular checkups, and what they can (and cannot) provide.

In particular he spoke of the high value that LIPID measurements provide, and he took time to explain the process by which cholesterol is administered in the body with LDL and HDL cholesterol types.

The primary thrust of Dr. Fabry's presentation highlighted that a patient is best benefited from advocating on their own behalf, and playing an important part in the management of their own health care.

The presentation was recorded and will be made available online shortly via the Breathmatters YouTube channel.

Dr. Jeremiah Fabry

Speaker Dr. Jeremiah Fabry at Breathmatters in Richmond Virginia


STALKER AUDITORIUM

Johnston - Willis Hospital
1:15 PM to 3:00 PM

VALET PARKING PROVIDED AT NO CHARGE

DOOR PRIZES

You're Invited! Refreshments Provided!


Past Meeting: March 11, 2019

SPEAKER:

Christina Hunt, RRT-NPS

Cristina Hunt at Breathmatters

TOPIC TITLE:

Breathing Tips from Breathe-Live-Fit

Christina Hunt at Breath,atters March 2019

Breathmatters Meeting Christina Hunt

Christina Hunt

Christina Hunt

Speaker Christina Hunt spoke on her experience in rehabilitation for lung disease sufferers and provided helpful tips on meeting certain challenges, for example:

1. How personal bathing can be problematic for people with lung issues, and how that can be overcome.

2. When and how you should have your "rescue inhaler" at hand.

3. How to strategize to meet environmental issues.

4. Utilizing oxygen in a shower setting.

5. How terry cloth can be used to dry off in order to decrease the necessity of physical assertion in the drying off process after a bathing.

6. How important it is to take the time needed to safely and effectively use bathing as cleaning and a relaxation experience.

7. How to haul a load - carrying objects with less breathlessness.

8. Importance of upper body strength, and how to safely increase the power of muscle groups.

9. Using "purse-lip" breathing during exertion.

10. Recognizing limitations to make for the most comfortable way to handle physical tasks.

11. Rolling-totes and their utility for lung disease sufferers.

12. How to plan ahead for tasks such as moving groceries from an automobile to the home.

Breathing Tips from Breathe-Live-Fit - https://www.breathelivefit.com/


Past Meeting: November 12, 2018

Megan R Clayton Richmond Virginia

SPEAKER:

Megan R. Clayton

BSRT, RRT-ACCS, RPFT

TITLE:

Respiratory Therapy

Megan R Clayton and Lung Capacity in Richmond Virginia

Megan Clayton spoke on how changes occur in the body from a lack of proper breathing and that this affects posture, muscles and even creates skeletal changes if not corrected. Respiratory therapy addresses these issues and emphasizes the importance of exercise for improvement or maintenance of breathing capacity. While on this topic Megan spoke about the variety of inhalers that are available, the pros and cons of actuators, dry-powder inhalers and spray inhalers. She also spoke on the coming use of soft mist inhalers. A variety of related topics were covered during the question and answer period of the presentation.

A video of the recorded event is online at the Breathmatters Youtube Channel


BLF is Christina Hunt's blog for pulmonary patients. Christina is a pulmonary therapist at Chippenham Pulmonary Rehab who works with Kris Beshada, both have been speakers at past Breathmatters meetings.

Breathe Fit Logo

A Blog Devoted to People with Lung Conditions

This site was designed to help people with lung conditions live their best life. After a chronic lung diagnosis, you probably have lots of questions about your ability to manage your lung condition and live a quality, fulfilling life. BreatheLiveFit is here to support and encourage you to enjoy life at its fullest and manage your condition from day to day. The advice and support offered on this site comes from knowledgeable therapists in the respiratory field as well as pulmonary rehabilitation patients that show us each and every day that life is what you make it! You can find information on this site to help you on your journey of managing your chronic lung condition. Subscribe to our site and receive emails when new information is added. We want you to gain confidence, manage your breathlessness, get fit and live life to its fullest!

https://www.facebook.com/breathelivefit/

Christina Hunts

FOCUS GROUP - HELP BREATH MATTERS
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BLOODWORK IN YOUR HOME!

MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!

See a youtube online video that discusses Medalabs in the Richmond area.

THANK YOU TO FASTCAP

Pocket Mask

MXV Pocket Dust Mask

FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!

MORE INFO AT fastcap.com

Finding Hope in Hospice

Pulmonary Fibrosis Study

IPF WORLD WEEK

LEARN MORE AT
THE IPF WEBSITE

ipfworld.org

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Using an Inhaler Online Video

WHY WE NEED YOU TO CONTACT YOUR CONGRESSPERSON

PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.

THE GOAL

PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.

WRITE CONGRESS

Virginia Easy Access

For seniors and adults with disabilities and the providers that support them

TRANSPORTATION FINANCIAL
HOUSING

Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.

Website: Virginia Easy Access

Questions?

804.937.6855


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804.937-6855

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Erik Weems