Come Early! Refreshments provided!
Chippenham Medical Center
7101 Jahnke Road
Richmond, VA 23225
ALL BREATHMATTERS MEETINGS ARE FREE AND ARE OPEN TO THE PUBLIC
MEETING SPONSORED BY
The February meeting with Patti Tuomey and Dolly Kervitsky was an interesting insight into the activities of the Pulmonary Fibrosis Foundation, and its worldwide effort to better educate physicians, the media and the general populace about pulmonary fibrosis. See more about this February 2014 meeting
Thanks to all who came out and a special thanks to Patti Tuomey and Dolly Kervitsky
The Participation Program for Pulmonary Fibrosis (P3F) are currently recruiting pulmonary fibrosis patients (fibrosis of any etiology, not just IPF) to sign up for a Contact Registry as well as for a study in which we will examine the effects of daytime supplemental oxygen on a number of outcomes.
For our supplemental oxygen study, we are looking to enroll patients currently using supplemental oxygen and those likely to need supplemental oxygen in the next year or so.
We are asking for your help only to spread the word about this study to all the members of your support group. All data collection will occur either online or via mailings.
Packets containing a more detailed explanation of the study along with recruitment materials (e.g., flyers, business cards) are being mailed to you and should reach you in a few days.
We appreciate your time and attention, and we hope that you can help us by letting the members of your pulmonary fibrosis support network know about these exciting opportunities.
If you would like more information about the P3F, please check us out at www.PFresearch.org and follow us on Twitter at @DoctorSwig or email our Principal Investigator, Dr. Swigris, directly at firstname.lastname@example.org.
In this video recording of the Sept meeting, Dr. Dan Grinnan talks about Idiopathic Pulmonary Fibrosis, what this ailment is and the challenges in treating it.
This presentation features Dr. Grinnan discussing causes, the difficulties in diagnosis, and the varieties of treatment. A question and answer period is included at the end of the talk (part 6).
Video recorded September 9, 2013, at Kraus Auditorium at the Chippenham Medical Center, Richmond, VA 23225
Entire video is also online at the youtube.com Breathmatters site (along with 58 other videos from other Breath Matters events)
Hampton Hobert Rasnick, 82, of Chester, passed away on Wednesday, Sept. 4, 2013. He was the son of the late Hobert and Milly Stanley Rasnick. He was also preceded in death by: three brothers and two sisters. Mr. Rasnick served his country proudly in the Navy on the USS Coral Sea.
...His family will receive friends from 6 to 8 p.m. on Friday, Sept. 6, 2013, at the Hopewell Chapel of J.T. Morriss & Son Funeral Home and Cremation Service. Interment will be private.
In lieu of flowers, memorial contributions may be made to Breath Matters,
c/o Russell Glover, President,
11520 Edenberry Drive,
Condolences may be registered at www.jtmorriss.com.
Read the full obituary at The Progress-Index
About the RAISE. We want to thank Mary Morgan and especially Don Bane for all their work putting this together.
The RAISE…we had 79 donors totaling $4977.87 netting $4646.14. Also, because of the RAISE letters and postcards, an additional $590.00 was generated from 4 other donors.
That money was NOT counted in the RAISE because it was mailed to us.
So the total generated was 5477.87 netting 5136.14.
WASHINGTON – The COPD Foundation (COPDF) announced that it has partnered with Edison Nation Medical, an online resource for individuals who have an idea for improving healthcare but lack the knowledge or resources to make that idea a reality, to find … Continue readingRead More...
Once again, The COPD Foundation will partner with the American Association for Respiratory Care (AARC) for their annual Advocacy Day on Capitol Hill on March 12th. This advocacy day is a great opportunity to stand up for the COPD community, speak … Continue readingRead More...
Are you experiencing any difficulty receiving liquid oxygen or concentrators? If you are, it’s important to let the COPD Foundation know. Call the C.O.P.D. Information Line to share your stories. They will continue to work with policymakers and suppliers to make … Continue readingRead More...
Virginia residents who take care of disabled or chronically ill family members can apply for $400 to cover the costs of having someone stay with their loved ones while the caregivers take a break. A total of $179,079 is available … Continue readingRead More...
Questions? Call the Facilitator, Russell Glover (804) 378.0628. Donation in Memoriam page
Chippemham Hospital of CJW is our largest supporter
Lincare, Rachele Clement, Representative
Louisa Home Care, Roger Householder, Representative
Roberts Home Medical, Jo Lynn Hamelman Supervisor
FastCap has donated 100 masks to BreathMatters. We are selling them for $3.00 which is FastCap’s retail. Pick one up at our next monthly meeting!
MORE INFO AT fastcap.com
David was a Board Member for Breath Matters.
BLOODWORK IN YOUR HOME!
MEDALABS - are you homebound?
Medalabs of VA can come to your home to perform bloodwork and more! Results to your doctor quickly!
See a youtube online video that discusses Medalabs in the Richmond area.
LEARN MORE AT
THE IPF WEBSITE
PF is a relentlessly progressive, ultimately fatal disease that affects the lungs, gradually robbing an individual of their ability to breathe. In the U.S. more than 200,000 people are living with PF; 48,000 individuals are diagnosed with PF annually; and as many as 40,000 die annually (1 every 13 minutes). Public awareness of the disease remains very low; there is no FDA approved treatment or cure for the most common form of PF, idiopathic pulmonary fibrosis (IPF); and there is no national PF surveillance registry to collect data and which is critical to developing successful therapies.
PFREA Creates a National PF Surveillance Registry A registry would improve data collection and information sharing. This should enable research to move forward more expeditiously. The bills contain a provision for the creation of an Advisory Board of governmental agencies, patients and patient advocates, clinical experts and scientists, and others with expertise in PF. The Advisory Board will be responsible for developing the Registry. The Registry will expand upon existing data and will be made available to the NIH and the Department of Veterans Affairs. It will include relevant data, such as incidence and prevalence, environmental and occupational factors, individual demographics, and other relevant information.
Recorded at the Monthly meetings
Call the Facilitator!
Virginia Easy Access is the name of a website developed for seniors, adults with disabilities, their caregivers and the providers that support them. Virginia Easy Access is full of helpful information about services and supports that are available across the Commonwealth.
Website: Virginia Easy Access
Contact Susan J. Keen,
RN, OCN at
CJW Med Center
email: Susan.Keen [at] hcahealthcare.com
Chippenham Hospital of CJW is our largest supporter
Lincare, Rachele Clement, Representative